Thursday, May 10, 2012

Second opinion?

So after Avery and I driving three hours, our reservations being messed up, so we thought (Chris booking them under my maiden name lol.) Getting it all straightened out. Avery and I settled down for the night. I hardly slept at all,and was already awake when the alarm on my phone went off. So we got around. Waited for his daddy to meet us. Got the road name from the man at the front desk that had the parking garage on it. To go there, realize that not only was it wrong..but that we forgot something. Great.  Turn around. Make sure we have everything, including the correct address. Finally get there..a half an hour late. I'm not sure how long we sat in the waiting room for,but I'm sure it seemed longer than it really was. I'm guessing we were in the room for maybe fifteen minutes. Saw the doctor for about five. And he told us exactly what I was hoping to hear, there's No concern for surgery. Thank God. He told me that his head was in the 50th percentile. And that he will just have our pedi keep an eye on head circumference. Such a relief.

After getting home and talking to my mother and grandmother, they reminded me of something.  At his last check up,just a week prior, they said his head was only in the 15-25th percentile. Would it really grow that fast in a week? They suggested getting a second opinion. And now, I'm back at not really knowing what to do. I don't want to not get a second opinion and have the first be wrong. And really, I would rather know for sure, even if others  consider it a waste of time and effort. So, I called our doctors office and am expecting a call from Dr leanord around three today. Were going to go over everything and discuss a second opinion. 

I'm hoping to hear the same thing. But after being in the position. Having that fear, my heart goes out to all of the families who are in those shoes. All of those parents stories I have read about them handing their babies to the surgical team and just waiting. I've talked to some amazing and strong cranio mother's, who are so inspiring. And am so thankful for those who have made it their mission to reach out to other mother's and help them. There are a few organizations that do things such as make care kits for the kids who need this surgery. I will be posting the websites on my blog for anyone who is interested in helping them out.

Tuesday, May 8, 2012

Almost time.

Do you ever just wish you could hide under the blankets,and it would make all the bad stuff go away?  Or even freeze time?  Almost like when you're little, and it made the monsters go away. Well, that's how I feel right now. As were sitting here ready and waiting until it's time to head to the hospital, I'm going over everything I want to ask the neurosurgeon.  I just want it all to go away. Being a mother, that's all we ever want is to protect our children. To make sure nothing bad happens to them. Some things are out of our control. So I remind myself, to be strong for Avery. That no matter what this doctor tells us,I have a very strong and amazing boy who will be okay. He's got a stubborn daddy and mommy. He had to of inherited some of that. Non the less, I would gladly take anything that could possibly hurt him away,and take it on myself.

There isn't too much longer and we leave the hotel and head over. I can't help but hope that the pedi and the radiologist are wrong. My grandmother thinks it's wishful hoping. I guess we will see.

Saturday, May 5, 2012

So close.

Only two more days until we head to Rochester. And three more until the morning of Avery's appointment. Now, I'm starting to get really anxious and nervous. I cannot wait to get it done with. We spent the last two nights an hour away from home.  Relaxing and spending time with my parents. This has made all three of the kids happy. And I think it's something I really needed.

Tomorrow will be a hectic day for us.  Avery's big sisters Brookelyn and kayleigh will be coming back Monday to stay with their nonnie and poppa while we are in Rochester. (I get extreme separation anxiety,but know they are in good hands) so we will hopefully be going to my nieces birthday party and then be spending the afternoon making sure I have everything they need packed,and everything Avery and I need packed. I have no idea what to expect for this appointment.  I don't know if the neurosurgeon will want more scans done, or what. I just can't wait to get this done so we know what's next for our sweet baby boy.