Tuesday, July 31, 2012

Plagiocephaly..

The last six weeks have seemed to drag on and on. But finally, we had Avery's second appointment with the ortho today. Going over Avery's history. Looking at his head, which seems to have a whole new shape to it these days. And doing more measurements. Firstly it was determined, Avery does indeed need to have a helmet. I've been dreading hearing those words. (more of that later on) However, with the previous diagnosis from the radiologist,and then a completely different one from the neuro the ortho decided to wait. WAIT?! More waiting? It seems as if this is all we have done. But she decided to wait, because she would like Avery to have another ct done. Being that his first was at such a young age,and we had conflicting diagnosis and the shape his head now is. She wants to make sure there is NO fusing before she puts him in a helmet. Okay, fine by us. Better safe than sorry. So then we needed to call his pedi and get that set up and the ball rolling. Earliest they can get us in for something like this? August 14th. Then another day or two on top of that to have the ct set up. Over all, his head circumfrence seems to have had a decent amount of growth. Spots induvidually? Barely at all. So, I guess we just wait some more right? Well let me just say, I'm extremely impatient. I just want definiate answers on what is going on with my sons head/skull so we can move to the next step. Work on fixing it. It's frustrating. Knowing something needs to be done, but not exactly what yet. I do not want Avery to have a helmet. If it has to be done, then yes I will obviously do what is best for him. But I wish he didn't need it. It might sound horrible of me..but I don't care what people think or say about me. But I know that it will get him stares, and people saying god knows what. And that's one thing that will bother me. But most importantly, I'm worried on how he will handle it. Will it bother him? Will he have difficulties sleeping? Will it delay him with things such as sitting up and crawling? I know it could be worse, and I thank god it isnt. But, I think any parent wants to protect their child from something being wrong no matter how big or small it may be. And this is just one of those things that I myself cant fix or change.


  A side view of my sweet boys head<3

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