This has not gone the way we had hoped and expected. Avery is not getting acclimated to his helmet as most little ones who have to wear one do. So it's a slow process. Apparently this is very rare. And somewhat frustrating. When all you want to do is be able to make your baby "better".  Add this to the overwhelming sadness I'm feeling today. For not knowing how long it is that he will take to get "used" to it. To worrying about if he is going to be uncomfortable during sleep. And sad for all of the soft and sweet baby head snuggles I will be missing out on. But then I take a step back, breath, and think about it all. How blessed I truly am to have three beautiful babies. And how, it could be worse. So, I will suck it up. Deal with it. Cherish that one hour I will have. Find other ways to closely snuggle him. And stick with it, until he is fully acclimated.

 The orthodist got us in last week fast, when we called her with concerns. The band was leaving marks on Avery's head and he was hysterical. She had us keep it off of him. She did some adjustments, and he has been doing alot better. We have been able to have him in it, for a total of three hours so far. It may not sound like much, but it's progress.

 I was lucky enough to find an amazing support group, full of a bunch of awesome momma's whose little ones have been, or are going through the same thing as Avery. It's a relief to be able to have people to go to to ask my questions, share my concerns, and everything else.


Here's the shape of little man's head BEFORE. I don't have the top view yet,but will share when I do.

 

 

Even now, there has been a big improvment from when he was first diagnosed, to now. WITHOUT the helmet.