A few facts.

I've learned a couple things since last night, while researching.

Craniosynostosis is congenital, meaning the condition existed during, or even before birth.
It occurs in one out of every 2,500 births.
It effects males twice as much as it does females.
And it can, but not always be genetic.


I bought a notebook, to keep track of any questions that I want to ask the neurosurgeon. Because, I know if I xrt be able to remember half of them!

Of course, not every website I've read says the same exact things.

I decided to go to the hospitals website. To read what they had about the Neurosurgeon that we are meeting with in May. So far, I am happy with what I have read about him. I hope I still feel the same way once we meet with him.
Monday I will be contacting Avery's cardiologist to ask if his heart problems pose any extra risks, or if any precautions have to be taken. I think I will also call his pediatrician, to see if we can get an appointment to go over everything with her in person right after Kayleigh's on Tuesday. Radiology should have a disc waiting for me on Monday that contains the xray and ct scan images, for us to take with us to Rochester.


Everyone tells me not to read all of the stories of the cranio babies. And to stop researching it. But, really I can't help it. It feels like the appointment with the neurosurgeon is SO long away. And, I hate not knowing what he is going to say to us. Atleast this way, I can be somewhat prepared. Though, I'm afraid no matter how many stories I read about the brave and sweet babies and their strong, and amazing parents, when it comes down to the surgery there is no way I will be prepared for the emotions I will experience.