I want to start off by saying, though I have doubted some of the on call pedis at our doctors when it comes to the pedi and np that are actually my children's, I adore them and trust them. However, since they really couldn't give me much information other than word for word what the radiologist report said, I decided I want to get some more opinions. They just don't seems to know much about craniosynostosis. I called a few different places. Including the closest hospital to me, Schuyler. The person I spoke to in radiology told me that it's the same group of radiologists that read the scans at Arnot. Well crap. Called a few other places. No luck. As a last resort, (and why I didn't think of it sooner, I don't know) I called my doctors office. Unfortunately, Dr.Coleman was in one of the other offices today. The nurse I spoke to told me to call back tomorrow and speak to him, that she's sure he would be willing. Dr. Coleman is an amazing doctor. My little cousin had been diagnosed with hsp. He didn't know much about it. But, once they knew he made sure he did. Whatever we are told, we are still obviously going to be seeing the neurosurgen on May 8th. But, it would really be nice to have another opinion.
Today Avery and his big sisters had a busy, and good day. spending the day and getting lunch ( which ofcourse consisted of breast milk for Avery.) With their great aunt, who just moved back home after over two years. Avery absolutely loves her already!! And ending the afternoon with lots of cuddling, smiles, and cooing. I could stay up all night talking to him and listening to him cooing back with his big gummy smiles. It's little things like that, that remind me how blessed I am to have all three of my children. Times like that , that I know everything will be okay, no matter what.
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